FAQ

Welcome to lastingsides.org.

You may have discovered this site after developing adverse effects often associated with the drugs covered within this site, or you may be a long time sufferer looking for answers.
Know that you are not alone.
If you are experiencing side effects and still using the substance you believe to be causing them, consult with your doctor and take any further steps you deem necessary. If your doctor denies your symptoms are due to a drug you are taking, consider the possibility that continuing with the medication may be bad advice.

Lastingsides.org is meant for the discussion of drug side effects that continue to persist long after cessation. If you plan on taking, or are still taking any of the substances covered within, heed the member stories here as a warning and post your questions or concerns elsewhere.

The following FAQs will attempt to answer many of the questions you may have about the future state of your health, and review some productive measures at your disposal which will likely benefit yourself and others in a similar situation.

Is this permanent? If so, will it ever get better?

It is difficult to say. Just as everyone responds to prescription drugs differently, the persistency of side effects is often different depending on each person’s individual biology.
Don’t give up hope too early.
In many cases, the severity of symptoms reduces within the first 6 months to year after they develop. Unfortunately, there are no guarantees.
If you have recently started to experience side effects the best steps to take are to report them, quit or wean off of the offending substance, make an effort to live as healthy as possible, and wait to see if things get better.

What are my treatment options?

While there are occasional stories of successful treatment of the drug side effects which are the focus this site, no reliable and consistently reproducible treatment has been found to date. Some have made dozens or even hundreds of attempts at symptom management without significant improvement, even under the supervision of world renowned specialists. The fact of the matter is that no recommendations for treatment can be made except to try to live a healthy lifestyle. Anecdotal accounts of successful treatment should be taken lightly. In the past, what has reportedly worked for one person has rarely worked for others. Keep that in mind.

How can I be sure my symptoms are side effects and not caused by something else?

Use your own best judgement when determining this. Were there any other factors in your life that could reasonably explain the symptoms you experienced during or shortly after your use of the suspected pharmaceutical product? Ask yourself what the odds are experiencing such symptoms if you did not use one of the drugs covered under this site.
Many of our members have been thoroughly evaluated for risk factors associated with their symptoms and found the pharmaceutical product they were taking to be the only rational contributing factor to their symptoms.

Can I pursue legal action against the manufacturer?

You should consult with an appropriate attorney or legal advisor regarding the circumstances of your particular case. There are also forums provided within this site for discussion of legal matters.
Generic drugs are held to different standards than their name brand counterparts in certain countries.
This may affect your legal rights.
There is likely a statute of limitations for filing a lawsuit in your case, so do not procrastinate in taking steps towards legal action if you feel it is a proper measure.

I am a long term sufferer, is there any chance of recovering?

The grim reality is that very few long term sufferers make a substantial recovery either with or without attempting treatment. It has become very clear that the most prudent way to overcome these long-term side effects is through better scientific understanding of the biological mechanisms which are causing them. If you are a long term sufferer, we hope you will join in the lastingsides.org effort to raise awareness and establish a scientific basis for our common shared side effect profile with the expectation that it will someday lead to a reliable treatment.

How can an approved pharmaceutical product have such drastic adverse effects?

The fact that doctors and patients are not warned of many severe and persistent side effects of common pharmaceuticals represents a regulatory failure. As victims of often rare drug side effects, we must accept that we are collateral damage of drugs that benefit the majority of patients who use them.
On the other hand, it is unacceptable that the adverse effects we experience are denied by regulatory agencies and drug manufacturers.
This is likely due to a combination of underreporting of adverse events compounded by refusal of manufacturers to list reported persistent side effects in the drug information.
The benefit vs. risk analysis of the drugs discussed on this site is often based on incomplete information.

My symptoms began after I quit, are these really side effects of the drug?

This is known as a withdrawal effect, which occurs upon cessation of many different drugs, and is believed to be a result of one’s body attempting to adjust to the absence of the drug’s effects.
This is also a trait shared by the drugs covered under this site. Many of the victims of the offending substances began experiencing adverse reactions or experienced worsening of adverse reactions shortly after stopping the drug which caused their persistent condition.
An explanation of how this effect is likely involved in our overlapping symptomatological profiles can be found here:

http://www.lastingsides.org/the-common-denominator

My doctor doesn’t believe me, what should I do?

You should prepare to face adversity when seeking medical attention for long term side effects.
“It’s all in your head” is a common phrase heard by our members when discussing their symptoms with medical professionals. In particular, sexual dysfunction among young people is considered rare, and doctors are trained to identify this as a symptom with psychological origins when blood tests reveal what are considered to be normal levels of commonly tested sex hormones.
Often, any psychiatric adverse effects resulting from a medication will be dismissed as being resultant from the condition which the medication was prescribed for.
Remember that your doctor was probably ill informed of potential harmful effects of the drug which you were prescribed.
In many countries, doctors are not required by law to report your claims of adverse drug reactions.
You should report your adverse effects to the manufacturer, and also to the national drug regulatory agency of your respective country.
A list of reporting options can be found here:

http://www.lastingsides.org/report-your-side-effects

Leave a Reply